Systemic sclerosis [SSc; commonly known as scleroderma] is a chronic, progressive and debilitating rheumatic disease. SSc mainly affects women (ratio of women to men is approximately 4:1) and is most commonly diagnosed between the ages of 30 and 50. Treatment is primarily palliative; there is no cure for this disease.

We have just completed data collection for a NIAMS-funded 2-year longitudinal study of psychosocial adjustment in SSc patients and their spouses. Ninety-three persons with confirmed diagnoses of SSc received clinical examinations and responded to standardized questionnaires at two time points approximately 8 months apart. Constructs assessed include disease severity and associated symptoms, functional disability, pain, psychosocial adjustment, positive and negative affect, health locus of control, appraisals, coping, stressful life events, self-esteem, and marital adjustment.

Our present activities are focused on statistical analysis and preparation of manuscripts and conference presentations.